The Lupus Chronicles Plus: 110 Pounds Woot Woot!

Systemic Lupus Erythematosus is a systemic autoimmune disease. the immune system attacks the body's cells and tissue. In SLE, the body's immune system produces antibodies against itself, particularly against proteins in the cell nucleus. SLE is triggered by environmental factors that are unknown. The course of the disease is unpredictable, with periods of illness alternating with remissions. SLE is treatable through addressing its symptoms. There is currently no cure.

Systemic Lupus Erythematosus is a systemic autoimmune disease. the immune system attacks the body's cells and tissue. In SLE, the body's immune system produces antibodies against itself, particularly against proteins in the cell nucleus. SLE is triggered by environmental factors that are unknown. The course of the disease is unpredictable, with periods of illness alternating with remissions. SLE is treatable through addressing its symptoms. There is currently no cure.

7.03.2011

110 Pounds Woot Woot!

Well, at the very least the corticosteroids are helping me reach my pre-SLE-reactivation goal of gaining weight. Damn, my appetite is whack these days: I used to have this great office ability to not have lunch and still survive long enough for a quick fast food dinner. Nowadays, aside from lunch I now have the urge to have snacks in between meals: most of the time McDonalds in the morning. Now everyone who sees me says I look like I gained a few pounds. In reality I really did. I'm now 110 pounds based on my last weigh-in in the bathroom. My gut is now large, and hence my office pants are a bit of a stretch, if you get my meaning. I actually had two new office pants tailored using a new larger waistline. I told my doctor about my renewed healthy appetite and she mentioned it was all in the mind. Hmm. Really? Anyway, I think eating a lot is OK, especially for an ectomorph-since-birth like me. The problem I think are the complementary activities that needs to be done to make this lifestyle healthier... like exercise.

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Living with SLE

SLE is not understood well enough to be prevented, but, when the disease develops, quality of life can be improved through flare prevention. The warning signs of an impending flare include increased fatigue, pain, rash, fever, abdominal discomfort, headache, and dizziness. Early recognition of warning signs and good communication with a doctor can help individuals remain active, experience less pain, and reduce medical visits.

Avoiding sunlight is the primary change to the lifestyle of SLE sufferers, as sunlight is known to exacerbate the disease. Drugs unrelated to SLE should be prescribed only when known not to exacerbate the disease. Occupational exposure to silica, pesticides and mercury can also make the disease worsen.

"Lifestyle and home remedies" by Mayo Clinic staff

Eat a healthy diet. A healthy diet emphasizes fruits, vegetables and whole grains. Sometimes you may have dietary restrictions, especially if you have high blood pressure, kidney damage or gastrointestinal problems. And although no specific foods have been shown to cause or worsen lupus, it's best to avoid any food that seems to make your symptoms worse.
Don't smoke. Smoking increases your risk of cardiovascular disease and can worsen the effects of lupus on your heart and blood vessels.
Get regular exercise. Exercise can help you recover from a flare, reduce your risk of heart attack, help fight depression and promote general well-being. Exercise as much as your body allows — aim for 30 total minutes of activity most days of the week, which can be divided up throughout the day. You'll likely feel fatigued and not up to exercising sometimes, and that's OK. Rest when you need to. Time outdoor activities so that you avoid the sun when it's most intense, and if you're having a flare, stay out of the sun entirely.
Be sun smart. Because ultraviolet light can trigger a flare, wear protective clothing, such as a hat, long-sleeved shirt and long pants, and use sunscreens with a sun protection factor (SPF) of at least 15 every time you go outside, even if it's just a quick trip to the mailbox. Be sure that your ears, scalp and the backs of your hands are protected. Avoid tanning beds and stay out of the sun entirely when it's strongest, from 10 a.m. to 4 p.m. if possible. Because fluorescent and halogen lights also can emit ultraviolet (UV) rays and thus aggravate lupus, you may need to wear sunscreen and protective clothing indoors or use plastic devices that block UV emissions from indoor lights.
Get adequate rest. People with lupus often experience persistent fatigue that's different from normal tiredness and that isn't necessarily relieved by rest. For that reason, it can be hard to judge when you need to slow down. Get plenty of sleep a night and naps or breaks during the day as needed. Friends and family members need to understand and respect your need for rest.